Boy have I had an education this week!!! I started research on 'The English Paper' and found out how much I did not know. First, there are several types of gluten intolerance and quite a vocabulary. After getting up to speed on vocabulary I learned that most people do a self diagnosis. It is impossible to find a Doctor who is willing to talk to you or pay attention to the lab results that are done as a matter of course. BUT all of this is for naught if you have eaten a gluten free diet for any length of time. As I have been gluten free for about 10 years now I am not going to get a lab test to prove that I have a gluten intolerance. The other problem is that my 7 year old son has been gluten free most of his life. The school nurse wants me to prove why he needs to take his lunch and remain gluten free. Also that the cafeteria must have documentation in order to follow his dietary restrictions. I can understand not wanting to follow every whim of every parent or child, but when the ramification are as big as those with gluten intolerance it seems kind of problematic to insist that each child eat so much grain.
I was amazed at how much this intolerance affects in the body. In some ways it affects all of the body systems. As I read the 3 page list, I could identify at least 1 problem if not the whole list in each body system that I had problems with when I was eating gluten. I was trying to decide which problem was the worst. The painful menses, the constant problem with flatulence no matter what you eat, or the psych problems of emotional swings that you do not seem to have control over. One thing I learned this week, is that the problems do not go away, but they can change as a child grows. I have been able to think back to my own youth and that of my oldest son and see how the autoimmune responses have changed over the years. I am still trying to digest and put into good form all of the information from reading several book that all agree on key point.
I had to go to the Dr. this week for a pain in my Lower Right quadrant that would not go away. In the process met the local Dr, who surprize of all suprizes new about gluten intolerance. He had been tested for it not once but three times. Wonder of Wonders! He agreed to write the school a letter after examining JW and taking a physical history from Me. Thanks
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